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I want to get evaluated because I believe I have a learning disorder of some kind. How do I ask my over-emotional “you’re fine” kind of mom to get me evaluated?

Don’t start with “I think there’s something wrong with me.” Frame it positively.Start with your school counselor, talk about your concerns, and ask about an eval and what it would entail. Ask them to help you frame the process as something the school offers for kids who want to focus on (fill in the blank) so they can do even better, because of course that’s precisely what it is.Your mom apparently doesn’t want to hear anything “negative” about you. Once she understands the possible advantages of having an IEP, she may even like the idea.

What did your child’s teacher say that made your jaw drop?

Well, I have three but two were school counselors.First was Kindergarten teacher. Son went to Montessori school and was quite bright. In K he came to me the 3rd week of school, because one boy in class could read, and asked me to teach him how to read. At that time I wasn’t homeschooling but I explained how to say the sounds and they went together to make the words. After 3 weeks of practice the kid was AMAZING! Never taught him gh was silent or all the other English weirdisms. December teachers conference and several parents are waiting in the hallway. Special Ed teacher is there. I go into room and sit down and teacher introduces her to me “because son doesn’t know the sounds of his letters”. I bust out laughing and told her I didn’t know what planet she was on but he reads Dr. Seuss books to ME at night and he really reads. 22 year old first year teacher: “OMG you probably have ruined him for life.” ME: It’s not witchcraft. It’s just phonics.” ROTFLOL (He tested out reading at 5th grade level in early 1st grade testing)Second was counselor, same school. School was unbelievable control freaks and I wasn’t allowing it. District is #1 or 2 in state and most parents have both parents with advanced degrees, so it’s not the inner city. We had son evaluated at Children’s Hospital Psychiatry section, but school would not allow teacher to fill out the HALF of the questions they needed to help him. Counselor calls me, a doctor, and says “if I won’t tell her his diagnosis, she is going to label him and put him in Special School District.” I just laughed a hysterical laugh and couldn’t stop. It made her more and more angry LOL Told her I didn’t know WHO she thought she was, but his private medical information was NONE of her business. Next day I dropped off the note informing them I was removing him to homeschool him.Last was a high school counselor. different son had severe Bipolar and schizophrenia and was on meds that made him appear drunk in the evening, so drugged he’d slur words. Counselor was in an IEP meeting in front of 4 teachers and the school Principal. IEP Head was arguing son should be allowed to get his driver’s License and drive a car. We have significant resources and hubby is ready to retire. Anyone who knows Bipolar patients know they often become explosive and impulsive and make very bad choices. If he grabbed those keys after he took his meds, he’d likely kill someone. Being responsible people, we decide it’s not right to endanger others and he’s not going to drive. We tell Director of IEP section that we’ve been advised by our attorney to not let him have a license and drive (true) Counselor butts in and won’t let it go. She’s angry and wants to argue saying we’re not liable since he’s 18. I explain if he’s driving a car I own and an attorney finds out our address, I promise we will be sued and we didn’t want to spend 6 figures to defend ourselves at our age. She gets more upset and stands up and says, “Don’t YOU think WE KNOW better what (son’s name) can do BETTER THAN YOU DO?” Hubby and son get “the look” and slink in their chairs because I’m going to give it to her good. I tell her as she well knows I schooled him for 10 YEARS, so yes, I DO know his abilities better than they do, and as a doctor I know the realities of living with a bipolar and schizophrenic child MUCH better than she did. After meeting I stand up and head towards her. Like a 12 year old she says, “I don’t have to listen to this, turns her back and walks out.” Principle tries to tell me I have no right to tell counselor that her behavior was very bad form. I tell Principal she supposed to actually have a management degree and she damn well better get a grip on her employees behavior. Counselor contacts me afterward and addresses me by my first name. I write back and say that she may write me or talk to me but in all future discussions she was to call me by my title, “Dr”. Second son at school with same counselor comes home from school the day she gets email from me. He is laughing so hard he’s crying. tells me they called him into counseling office and said that counselor “wasn’t a good fit” for our family and they all had a new counselor……No more problems;)

Why do some parents ignore the signs of autism in their children?

I ignored the signs because I didn’t know what they were.My mom died when my first child was 6 months old. My husband and I had pretty much no experience with babies or toddlers before she was born. The nurse at the hospital even had to show us how to change a diaper. Caring for a baby turned out to be much more complicated than I imagined. I had been relying on my mom to help me figure out how to care for a baby. So after she died we were on our own.We got some parenting books to give us some insight. My new daughter’s development seemed to be a bit behind what all the books said, but then the books assured anxious parents that all children develop at different rates and not to worry if the little one didn’t develop according to the schedule. She seemed ok so we didn’t worry. Besides, I was too overwhelmed with grief about my mother dying and the consequent move that it necessitated to really focus on her. With our lack of experience with babies we didn’t really know what she was supposed to do so we didn’t know she wasn’t doing it.When she was two we decided to put her in day care a couple days a week. We figured the social interaction with other kids would be good for her. Her teacher there expressed concern about her. She would spend the day staring at the fan instead of playing with the other kids. She suggested we have her evaluated, but no one ever said the word autism.The child specialists gave us the MCHAT test to fill out. This is a test that is supposed to diagnose possible autism. My daughter “passed”- the results said that she was fine. Nevertheless, it was recommended that we send her to a preschool in our school district that accepted students who still needed help developing. We did. She liked school and all seemed well.Then when she was five she quit talking. For six months she never uttered a word, not even to us. It wasn’t that she couldn’t talk, it was because she wouldn’t. finally with the help of her teachers and a child psychologist we broke through to her.She was placed on an IEP and continued public school. Still no one mentioned autism. She was well behaved and continued to receive therapy and special accommodations. She still didn’t make friends or engage much with the other kids. As she progressed, her grades were terrible, but again her teachers didn’t express real concern. In fact, by third grade they decided she was doing so when she didn’t need the IEP anymore.Finally in fifth grade we started her in counseling. We were concerned about what we thought was simple social anxiety. She felt stressed every time she would change classes. She felt rattled after lunch because of the chaos and so couldn’t focus on her next class. Finally we got the word- she was diagnosed with autism. We were relieved actually- in retrospect it all made sense. She was put back on the IEP. School was still terrible for her.Last year we were able to put her in a private school for special needs kids. Ohio offers scholarships for private schools to any child with an autism diagnosis. She is thirteen now. She still only rarely talks, and still doesn’t have any friends. I have tried to send her to the youth group at church, but she just sits in a corner away from the other teens. She has a long way to go yet, but the school is fabulous and she is making slow progress.So that is why we ignored the signs of autism. I am glad she finally got the diagnosis so she could actually get the help she needs. I wonder how she would be now if we had know earlier and were able to put her in a private school then. They say early intervention is the key. But it only works if you know enough to get it.

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