Down Syndrome International: Fill & Download for Free

It was worse than Downs - it was Trisomy 18. These children are born with catastrophic internal malformations that are incompatible with life. I was told that I would probably have, at max, 72 hours to enjoy my child at birth before death came.The triple-screen blood test first indicated this diagnosis. Next was the quad-screen, which seemingly confirmed. Two more darkly inconclusive scans, and a visit with the genetic counselor, and I became increasingly frustrated. My option for termination was laid out before me, by multiple medical personnel.I kept asking “But how do we KNOW?” After discussions of potential ratios (one in seven, one in three), I was told the only way to absolutely know was to have a genetic test - chorionic villi sampling, or amniocentesis - both of which carried significant risk of miscarriage. And then I was told that there was another way.Apparently, fetal cells are in an expectant mother’s bloodstream within just a few weeks after implantation. Thus, blood could be taken, fetal cells spun out, and then genetically tested. The down side was that insurance didn’t cover the test, which was about $2K. This was significantly more expensive than a termination. I grimly paid it.One week after the blood draw, I received a telephone call. The child was fine, and it was a boy.Image mine.But even if the prognosis had been different, I would have completed the pregnancy, and held my sweet baby in my arms, and loved him until he passed away. We all have to die anyway, and at least his mommy and daddy would have been there with him.

.How were people with Down Syndrome treated in the Middle Ages?They treated people with Down Syndrome in different ways depending on the time, country, community, and the parents.Some times a community treated them as appreciated members because they could do small, simple but vital tasks like weeding, tending flocks, digging, helping in the kitchen and more.Other times they were treated inhumanely. Often religious communities would take them as abandoned infants and keep them in safety all their lives — whatever the length. They would be interred in sacred ground as every other monk or nun was.I think the wealth and status of the parents could determine their fate. Artists included them in art thus immortalizing them.A.Lady Cockburn and her childrenB. This artist possibly used an IDD child as a model.The Adoration of the Shepherd paintingC.Satyr with Peasants painting by Jacob JordaensD. Note they have entrusted this IDD child with a rare and expensive pet.Ecce-homo-scene paintingE.Adoration of the Christ Child by unknown Flemish painter (1515)showing typical characteristics of Down syndrome in the angelnext to Mary and also in one of the shepherds(Metropolitan Museum of Art, New York).So, medieval people had IDD children. Those children rarely survived into their teens which is why the ones in my photos are all children. Today, advances in medicine and public education have enabled many IDDs to reach adulthood, run a business, and be very valued members of society.NOTE: ℑ 𝔴𝔢𝔫𝔱 𝔟𝔢𝔶𝔬𝔫𝔡 𝔱𝔥𝔢 𝔪𝔢𝔡𝔦𝔢𝔳𝔞𝔩 𝔱𝔦𝔪𝔢 𝔭𝔢𝔯𝔦𝔬𝔡 𝔱𝔬 𝔦𝔫𝔠𝔩𝔲𝔡𝔢 𝔰𝔬𝔪𝔢 𝔭𝔥𝔬𝔱𝔬𝔰. ℑ 𝔠𝔬𝔲𝔩𝔡𝔫’𝔱 𝔣𝔦𝔫𝔡 𝔢𝔫𝔬𝔲𝔤𝔥 𝔭𝔥𝔬𝔱𝔬𝔰 𝔱𝔬 𝔪𝔞𝔨𝔢 𝔪𝔶 𝔭𝔬𝔦𝔫𝔱𝔰.Also, Quora has a glitch. I can’t get the cotton-picking quoting function to appear. 🤬Redirect Noticea. https://www.researchgate.net/figure/Lady-Cockburn-and-her-children-painting-by-artist_fig2_238601316b. c. d. https://www.researchgate.net/figure/The-Adoration-of-the-Shepherd-painting-by-Jacob_fig3_238601316e.Down Syndrome through the centuries in art - Hektoen International

They were described as people with flat wide face, small chin and slanted eyes with small neck and flat nasal bridge. Langdon Down decided that people with this genetic disorder are very similar to Asians. The name Mongoloid, Mongolian idiocy, were used to describe people with Down syndrome.Even though it was first described in 1862, the term lasted officially until 1960s. Scientists petitioned to remove the name Mongoloid and rename it as a Down syndrome. Also, Mongolian Government has officially requested WHO to not call people with Down syndrome as Mongoloid.But what is appalling about this racist description is that it is still used by many doctors around the world. In the article below, you can read how a Mongolian woman, Uuganaa faced difficulties and discrimination when her child was diagnosed with Down’s syndrome in UK . Her own doctor told her that “Down’s syndrome would not be that noticeable to Billy’s appearance because of her ethnicity.”Why are the words 'mongol', 'mongoloid' and 'mongy' still bandiedA different country and different situation. Dr Libby Weaver had to recall her book after writing Mongolism when describing Down syndrome.Dr Libby Weaver recalls 20,000 books after 'mongolism' outrageFound this interesting correspondence between Mongolian Government and WHO on usage of term Mongolism. This one from 1982.[1]In 2016, Permanent Mission of Mongolia to UN still has to talk about Down syndrome and the term Mongolism. Some racist terminology just wouldn’t die.https://www.un.int/mongolia/sites/www.un.int/files/Mongolia/down_syndrome_side_event_4_1.pdfThis is what Langdon Down wrote in 1862:“the great Mongolian family has numerous representatives and it is to this division I wish, in this paper, to call special attention. A very large number of congenital idiots are typical Mongols. So marked is this that, when placed side by side, it is difficult to believe the specimens compared are not children of the same parents. The number of idiots who arrange themselves around the Mongolian type is so great, and they present such a close resemblance to one another in mental power, I shall describe an idiot member of this racial division, selected from the large number that have fallen under my observation.The hair is not black, as in the real Mongol, but of a brownish color, straight and scanty. The face is flat and broad, and destitute of prominence. The cheeks are roundish and extended laterally. The eyes are obliquely placed, and the internal canthi more than normally distant from one another. The palpebral fissure is very narrow. The forehead is wrinkled transversely from the constant assistance which the levatores palpebrarum derive from the occipito-frontalis muscle in the opening of the eyes. The lips are large and thick with transverse fissures. The tongue is long, thick and much roughened. The nose is small. The skin has a slight dirty yellowish tinge, and is deficient in elasticity, giving the appearance of being too large for the body.”John Langdon Down: The Man and the Messagephoto credit: Uuganaa’s son, who was diagnosed with Down’s no syndrom, passed away when he was 3 months old.Footnotes[1] ”Монголизм”-ыг эсэргүүцэх тэмцэлд оройлсон Монгол эрдэмтэн