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Have you ever been rushed to the emergency room, but the doctors couldn't figure out what was wrong with you?

Oh boy, yes! And the best part of it was, all of this was completely unnecessary, let me go back to the very beginning shall we?(If you don’t want the back story and know perfectly well what a cochlear is, and what Mondini Dysplasia is and you just want to get to the story, scroll down until you see a duck, then that’s when the original question gets answered! You’re welcome!)*teleports back to the very beginning!**whoosh*Alright, so I was born profoundly Deaf, and my parents tried so hard to find a ‘cure’ seeing as I was the only Deaf person in the family. We tried doctors/audiologists but a cochlear implant was not recommended but we couldn’t figure out why.I think I attempted to get a cochlear implant roughly four separate times but I was still not being approved, it was always full of excuses, either the hearing I had on my left ear was still too good to justify a cochlear implant (even though my right ear was practically deaf), or that there was just too many risks that outweight the benefits. Obviously after hearing that over and over, I just accepted it. I was going to be completely deaf on my right ear.Then I moved to England (from Scotland) and at the age of 22, I enquired about the cochlear implant yet again to a new doctor. He never heard of what a cochlear implant was, (so I kind of used it to my own advantage ^_^) and the doctor referred me over to a specialist in one of the leading hospitals in the UK.A few weeks later I got an appointment and it was discovered why I was rejected all of this time. Apparently (and I only say apparently because this was a condition I had all my life and at the ripe age of 22, I just discovered this!), I had a condition called…Mondini dysplasia (it does look like I randomly punched letters on my keyboard but that’s what I have). Basically, you know how the cochlear looks a bit like a snail?A bit like this (if I can figure out how to paste a picture onto this)(ignore the wire part, that’s what a cochlear implant does) but yes, that’s what a cochlear looks like, and it’s responsible for converting sounds into electrical stimulation so your brain can understand it. Notice how it seems to have 2 and a bit turnsWell apparently mine looks a bit like this (I am sorry for the incredibly complex image you are about to see, it is done with my wonderfully amazing art skills since google cannot find a decent picture of what my cochlear actually looks like.Yes, so my cochlear has one and a half turns…I figure by now since the population of Quora be like “WE NEED TO SEE PROPER TERMS AND PROPER EXPLANATION OF WHAT THE CONDITION IS TO FILL OUR KNOWLEDGE OF PROPER INFORMATION RATHER THAN A PICTURE THAT CLEARLY LOOKS LIKE YOU DID IT THROUGH PAINT!!!!” - pfft, fine, be right back then!“The Mondini dysplasia describes a cochlea with incomplete partitioning and a reduced number of turns, an enlarged vestibular aqueduct and a dilated vestibule. A normal cochlea has two and a half turns, a cochlea with Mondini dysplasia has one and a half turns; the basal turns being normally formed with a dilated or cystic apical turn to the cochlear. The hearing loss can deteriorate over time either gradually or in a step-wise fashion, or may be profound from birth” - Quote from Wikipedia, you’re welcome!Right, so…..let us get back to our story time. Where was I? ….*scrolls up* ah yes, so the doctor explained that this was the condition I had, which means that the operation would be very difficult and it would have more risks associated with it than the normal cochlear implant operation. Obviously I was disheartened but I was so happy when they said they can still operate.Right, so let’s actually answer the question now, what exactly was the doctors unable to explain…..So, for the actual operation, it went fine, there was a lot of leakage, but that was to be expected with the condition I had, turns out, it was a day operation so I was sent home that day. I was told to be put on bed rest and I was to expect a little blood coming through my nose. Hmm…Okay.I was fine for the first three days post op. But then I found I was bleeding through my nose, my ear, and I just felt quite off…..so an ambulance was called and we were teleported to the hospital (not the original hospital, which is part of the story….)We arrived at the hospital and I was rushed to A&E. I had all my usual checks, my heart rate, my pupil dilation, and all that fun tests that nurses like to do at 4 in the morning….What I found though was, I was getting more and more tired. I couldn’t sleep yet couldn’t stay awake. But every four hours, I had to take a drug called ‘Codeine’. After taking it, I’d be back to sleep, and I believe we were there for 8 hours and nobody came over to tell me what was wrong with me. A doctor finally came over to explain that nobody in their department has seen someone with a cochlear implant and so they wanted to transport me back to the original hospital seeing as they are the ones who are specialists in cochlear implants…..so off we went. I do remember falling asleep a few times on the way to the other hospital.We arrive at the hospital and they did their checks, and soon enough (well when I say soon enough, it was about another 8 hours) before I was checked in as a patient and had my own bed. Things seemed to be okay, I just felt a bit sickly every now and again. And they kept giving me Codeine, every four hours……(the codeine was meant to help reduce the pain and swelling from my operation)….I did let the nurses know that my head did feel like it was going to explode…there is something that is quite unexplainable, it was like my head was full of pressure and I did feel really worried about that.So here is the fun ,fun, fun, fun….part of it all. As I am Deaf, when people talk to me, my first instinct is to smile and nod and hope they go away, and turns out I did the wrong thing…..it was about 11:45pm that night, with two people coming into the room. One was a doctor, and the other was a nurse. They mentioned something called a ‘lumbar puncture’, which I had no idea what it was, and the next thing I know is…..I need to grab my knees, while they cleaned my back (why were they cleaning my back….it’s my head that really hurts!) …….they injected a long narrow needle into my spine, and let’s just say it’s not something I’m desperate to do for fun in the future…..and they left me to it. It wasn’t until I googled it (as I was in a lot of pain, I’m pretty sure my google search was initially “WHAT THE F@CK IS A LUMBAR F@CKING PUNCTURE?!” but once I calmed myself down, I googled it, and I found out that they were trying to extract the spinal fluid to see if that was what was causing the pressure in my head.What I did notice over the next couple of days…..along with being woken up every four hours for codine….was, if I was to move my head ever so slightly, I’d vomit. If I was to try bending my legs, more vomit. If I was to look upwards without moving my head, again…more vomit.See, I can handle vomit, usually I feel great after vomiting, but no, it felt a lot worse. and I’m sure anyone who has vomitted non stop for at least 3 days, can understand that being in a hospital full of people you don’t know, constantly vomiting, and not being able to smoke…..with a needle in your back……it’s not the most fun thing to go through. But after five days, they removed the needle in my back, and I was told that the vomit was normal for someone going through with the lumbar puncture, and after a few hours, I should be feeling a lot better!Great!Except I wasn’t feeling better, I was still vomiting.I even had a physiotherapist come into the room warning me that I’ll need to learn how to move without being sick, and that it’s probably just because my body was used to lying in the one position and my balance was going off the charts. She also said that if it’s not done soon, chances are, this will be chronic. So she sat me up, and we practiced standing. Pft, let’s just say I stood….for a second, before vomiting again.It wasn’t until that night when my partner and I were talking away through Skype. And she managed to figure out what was going on.(oh boy, don’t we all just love backstories?! I swear I’ll make this short)It was the previous year, when I was in pain, and my partner gave me one of her meds (I know, spare me the lecture!) but I ended up having an ambulance called and they put it down as constipation….and left.Anyway, she compared the ingredients in both and found that Codeine was the same ingredient and told me to stop taking the codeine.I spoke to the nurses and after being sleep deprived, I pretty much ordered them about. They were NOT to wake me up every four hours, they were to stop giving me codeine, I was going to get a nice shower, get a decent sleep, and all will be well with the world.Safe to say, I slept wonderfully that night, woke up, had my breakfast, even tidied up the room. I packed my stuff up and told the nurses I was going home. Obviously the world doesn’t work that way but they did discharge me that day.So yes, I’m allergic to codeine, so if I need a trip to the hospital with a needle sticking into my spine and being sleep deprived, I’ll be “surely” taking that drug again!Edit - 10/09/2017Okay, so now that I’ve actually finished work, I think I should add to this lovely answer, about what happened afterwards….safe to say I made a few complaints. While the cochlear implant is doing wonders for me, I am noticing sounds as more…3D rather than relying on my one ear.Email One: (To the complaints department of the hospital)Hi there,I feel this email address should really be saved as a contact with a number of times I've contacted you.Well, the journey I've had with having a cochlear implant has not been a straightforward journey even before I've even had the bloody surgery! Even after the surgery, I ended up being hospitalised a couple of days later for the weekend, during that time I had to have a lumbar puncture procedure which was not that great to have a needle stuck in your spine for 4 days straight!Urgh, so anyway as you can imagine I was more than happy to escape from that hospital when I got the first chance! But anyway, this is not what I'm going to be talking about, but instead, I'm going to be talking about what happened today (28th of November 2016)As you can imagine, this was meant to be one of the most exciting parts of the whole journey so I booked today as annual leave at my work to attend the hospital, I've spent money on transportation (taxi to get to the train station, the train tickets and a plus bus). All of these costs were not going out of my money, but my carers money as I only just started working 2 weeks ago and wouldn't have been paid in time.The original idea was that because I was getting my cochlear implant 'switched on' today, the costs would work out in our favour because this was meant to be the real beginning of being able to hear out of my right ear.So, we arrived at the hospital slightly late due to our train being delayed and we were told to wait in the waiting room but since the waiting room is not very accommodating (have you seen just how tiny that room actually is?!) so we ended up waiting in the lobby. I recognised the audiologist I saw in the first appointment I had and I saw he was scrambling around in the cochlear filing cabinet. Somehow this rang alarms in my head....(surely nothing is going to go wrong, surely everything will be smooth from now on) .....we get called into the room and I'm sitting down feeling really exciting that I'm going to be getting my cochlear implant and it'll be really exci- oh wait....suddenly I'm being told that the cochlear implant hasn't even been ordered yet.....so the appointment went from a life-changing moment to.....a complete waste of time.I wasn't able to get my cochlear implant mapped, I wasn't even able to attend the next appointment I had today which was meant to be equipment briefing. So the appointment was simply a check up on how my scar was looking.This didn't just cost money through transportation, but instead lost wages, of both myself and my carer, lost hours I could have been spending on my own university studies as that is getting seriously behind now as I've had to spend some time recovering from the operation itself.What they managed to do was refund the train tickets, but I still lost a days wage which was…frustrating.Email Two: To the complaints departmentThis was before the operation, I should have moved this to the first email, but what happened was, in the pre-operation appointment, the nurse kept blethering away while filling out the consent form and she failed to ask me if I wanted students to be present in the operation….and with me having a very rare conditon, I was having none of it, yet I wasn’t asked this and she still ticked the box which I couldn’t do anything about as by the time I read through the consent form, I was on the train heading homeSo, I sent them a lovely email.Me - “I'd also like to notify that (Nurse) never asked me if I was okay with students being involved with the procedure, I would like to decline this although on the content form she already ticked yes, would you have any suggestions on what to do in that situation? I'm sure it wasn't intentional or anything it was only after I was reading through the content form and I noticed this was on the sheet when I was never specifically asked. I just don't want to be turning up to the hospital and having to tell people that I didn't want students to reduce my anxiety. If you could let her know that I don't want students there, that would be fabulous xx”Complaints department - “That’s absolutely fine, don’t worry about it. I will talk to (nurse) myself”Me - “Hello (complaints department),Thank you so much for everything you've done, but I thought you'd appreciate an update on the situation with (Nurse)My girlfriend, phone just rung shortly after our conversation (She is my also my carer so takes phone calls on my behalf). It was (Nurse) herself who aggressively tried to advocate to have students in the room, completely disregarding or even acknowledging the fact that having students in the room would make me feel extremely anxious and scared, even more so since this is the first kind of operation I have ever had. She kept interrupting (girlfriend) saying that we have to appreciate that (Hospital) is a teaching hospital and that I should let them observe as I have a condition not often seen and that if I didn't allow it she would have to discuss this with the consultants giving me the impression that if I refused, my operation might not go ahead.I completely appreciate that (Hospital) is a teaching hospital but I just feel in this case she didn't appreciate my rights to say no. As I hung up, I felt guilty for using my own rights as a patient instead of letting (Nurse) intimidate me. She phoned shortly afterwards without a simple hello, to say that was fine and I was to tick no in the consent form before she hung up.And this was why I wasn't too keen on forwarding this to (Nurse) in the first place.Jake”Complaints department - “In terms of the other concern you raised relating to consent for medical students to be present and your experience with (Nurse) , I have now escalated these concerns to Deputy Operations Manager, Surgery. I have asked (Deputy Operations Manager, Surgery) to provide feedback regarding your experience and to confirm that students will not be present during your procedure and that you do not feel comfortable with (Nurse) being involved with your care in the future. Once again, I must apologise for your experience, once I have more information I will be in touch.”Complaints department - ““Thank-you for forwarding this onto me, it has allowed me the opportunity to feedback to (nurse) a patients experience of their interactions with her which we both used to understand our behaviours and communication seen from our patients eyes.Firstly we would like to thank Jake for raising the concern, it cannot have been an easy decision to make but we are grateful as it has allowed us both the opportunity to understand and improve the standard of care we deliver and without such feedback we risk failing our patients expectations and needs.I have spent some time with (Nurse) discussing this complaint and (Nurse) was concerned to hear that Jake was left feeling anything other than fully prepared, informed and supported throughout their treatment by her. She is particularly sorry that Jake and his partner felt under any pressure to agree to students being present. In her experience she has not come across any patients who have refused students and whilst this does not lessen the validity of the request but perhaps it was glossed over and the details not laboured on the consent form and so undoubtedly it was discussed insufficiently on this occasion. (Nurse) and I have reflected on how we can ensure that all patients wishes are actively sought, listened to and understood and then of course complied with, in particular with regard to the presence of students. I think this process serves as a reminder that we need to address this question more clearly to ensure that each patient is fully aware of their rights and that these are fully respected. In future she will ensure that patients clearly understand they are in full control of whether they have students present as part of their consent process.Additionally: there have been some factors which (Nurse) feels might help us to prevent such circumstances occurring again which perhaps were not picked up in the complaint but I felt were useful issues to be raised.-There was no interpreter available for this appointment which was deemed desirable. (just going to add here that there was actually a sign language interpreter present….never mind, apparently the person in the room flapping her hands was not my interpreter…..never mind….anyway, back to the lovely response….) (Nurse) made the decision to proceed with the appointment to avoid disappointment or delays and today we feel that the hindsight that this feedback has offered the appointment should have been rearranged with an interpreter and so helping with effective communication. The outcome may allowed extra confidence in the process and the opportunity to ask questions and so all parties were clear about what was discussed. I can see the benefits of both options for (Nurse) on that day and unfortunately proceeding without an interpreter has contributed to this patients experience and the quality and the completeness of their dialogue, and I do think (nurse) made a considered decision on that day but perhaps unaware of the consequences. This complaint forms useful feedback to help future decisions.-(Nurse) has reflected on the flow of patients she sees during her clinics and the pressure she can feel under to see the next patient. This may limit the time available to discuss the consent form properly and she will consider whether patients taking it home to read thoroughly and digest and then offer a method to answer queries prior to signing the consent form. This time away from Clinic with the consent form may have helped Jake’s involvement and absolute understanding of what he was signing , rather than what appears to have been a unsatisfactory consent process.(Nurse) and I discussed the follow up call with Jake’s partner and in particular the terms: abrupt, aggressively and intimidate. (Nurse) was alarmed to hear these words and her concern was solely for how she had made Jake feel like this at such a stressful time. (Nurse) reflected that her manner could have been seen as abrupt and that this feedback has allowed us to discuss styles that we can adopt to try and avoid this . (Nurse) will aim to be mindful of her patient’s needs and feelings, their response to her during consultations and to obtain feedback at the end of consultations to ensure both parties are clear about what has been discussed and that all questions have been covered satisfactorily. I am sorry that you were under any pressure or feeling that your surgery was not going to go ahead, this would absolutely not be the case at all and you are perfectly within your rights to refuse students being present, your right to refuse anything will not affect your access to other services available. I am sorry you were left feeling like this. I hope that I can reassure you that your request for no students present has been communicated clearly with the team ahead of your surgery.I do hope that this helps illuminate the way forward with our own thoughts on the interactions referred to. (Nurse) and I wish Jake well with his surgery next week. It must be both an extremely exciting yet anxious time and (Nurse) and I are profoundly sorry if this time has been made harder by (Nurse) actions or words. We look forward to seeing you here at Addenbrooke’s in the future and we hope that your future experiences are entirely positive”With best wishes”Safe to say that my journey hasn’t been easy, but I’m glad I managed to get through it. Barely though! :DI now have a full time job, 39 hours and I am coping a lot better than I did in my previous job which was only 18 hours. It’s much less lip-reading, and more being in the moment! :D

What did you say or do when your school teacher suggested getting together with them privately outside of school?

I would say, “Ok, great! I just have to make sure it’s ok with my mom first. Actually, can she come too?”It is generally inappropriate for teachers to meet up with students outside of the school, but sometimes it can be ok. At my school, this sort of thing always required approval from the principal. For example, before AP exams, some teachers would meet up with students at coffee shops in big study groups to go over the material and have a little fun in a context that isn’t so rigid or stressful as studying in a classroom environment can be. Of course, this needed to be approved between the teacher and the principal for each individual meet up, including exact date, time, and location. Consent forms were sent home to parents to sign and approve, so that the parents would be aware of the exact situation as well.Outside of these situations, it would be inappropriate. Teachers can be friendly with their students, but they should never try to be friends with their students for many reasons beyond potentially illegal activities. It should be among the highest priorities to set strict boundaries for the sake of professionalism and maintaining authority in the classroom.

What is the process of kidney transplant in India?

THINGS YOU MUST KNOW ABOUT KIDNEY TRANSPLANT IN INDIAKidney transplants in India first initiated in the 1970’s and since that time, India has been a leading country in this field on the Asian sub-continent.Transplantation of Human Organ Act (THO) was passed in India in 1994 to streamline organ donation and transplantation activities. Broadly, the act accepted brain death as a form of death and made the sale of organs a punishable offence.Provisions of Transplantation of Human Organ Act (THO)Living donationWho can donate – mother, father, brothers, sisters, son, daughter, spouse and grandparentsBrain-death and its declaration –Three certifications are required:One certification from treating doctorsTwo more certifications from the doctors nominated by the appropriate authority of the government with one of the two being an expert in the field of neurology.Regulation of transplant activitiesRole of Authorization Committee (AC) –to regulate the process of authorization to approve or reject transplants between the recipient and donors other than a first relative.to ensure that the donor is not being exploited for monetary consideration to donate their organ.Information about approval or rejection is sent by mail to the concerned hospitalsRole of Appropriate Authority (AA) –to regulate the removal, storage, and transplantation of human organs.inspecting and granting registration to the hospitals for transplant surgery, enforcing the required standards for hospitals, conducting regular inspections of the hospitals to examine the quality of transplantation and follow-up medical care of donors and recipients.Authority for removal of human organAny donor may authorize the removal, before his death, of any human organ of his body for therapeutic purposes as specified in Forms 1(A), 1(B), and 1(C), to be submitted with proof of identity and address, marriage registration certificate, family photographs, etc. with attestation by a Notary PublicPoints to remember –Before removing a human organ from the body of a donor before his death, a medical practitioner should satisfy himself that the donor has given authorization in Form 1(A) if the relative is a close relative i.e., a mother, father, brother, sister, son, or daughterThe donor is in a proper state of health and is fit to donate the organ. The registered medical practitioner should then sign a certificate as specified in Form 2.The donor is a close relative of the recipient as certified in Form 3 and has signed Form 1(A).The donor has submitted an application in Form 10 jointly with the recipient and the proposed donation has been approved by the concerned competent authority.Cost of donor management, retrieval, transportation and preservation to be borne by the recipient, institution, government, NGO or society, and not by the donor family.Things a medical practitioner confirm before removing an organ from a dead body –The donor had, in the presence of two or more witnesses (at least one of whom is a close relative of the recipient), unequivocally authorized as specified in Form 5 before his death,the removal of the human organ of his body after his death for therapeutic purposes and there is no reason to believe that the donor had subsequently revoked the authority.The person lawfully in possession of the dead body has signed a certificate as specified in Form 6A registered medical practitioner shall, before removing a human organ from the body of a person in the event of brain-stem death, confirm the following –A certificate as specified in Form 8 has been signed by all the members of the Board of Medical Experts.In the case of brain-stem death of a person of less than 18 years of age, a certificate specified in Form 8 has been signed by all the members of the Board of Medical Experts and an authority as specified in Form 9 has been signed by either of the parents the person.The proposed transplant is between persons related genetically (close relative, i.e., mother, father, brother, sister, son, or daughter above the age of 18 years old), the following shall be evaluated –Results of tissue typing and other basic testsDocumentary evidence of relationship e.g., relevant birth certificates and marriage certificateDocumentary evidence of identity and residence of the proposed donor e.g., Ration Card or Voters Identity Card, Passport, Driving License, PAN Card, or Bank Account and family photograph depicting the proposed donor and the proposed recipient along with another near relativeIf the relationship is not conclusively established after evaluating the above evidence, direct further medical tests may be given as described follows:Test for Human Leukocyte Antigen (HLA), human leukocyte antigen-B alleles to be performed by the serological and /or polymerase chain reaction (PCR) based Deoxyribonucleic Acid (DNA) methodsTest for human leukocyte antigen-Dr beta genes to be performed using PCR-based DNA methodsWhen the proposed donor and the recipient are not close relatives, the Authorization Committee shall evaluate that there is no commercial transaction between the recipient and the donor and the following shall specifically be assessed:An explanation of the link between them and the circumstances that led to the offer being madeReasons why the donor wishes to donateDocumentary evidence of the link, e.g., proof that they have lived togetherOld photographs showing the donor and recipient togetherThere is no middleman or tout involvedThe financial status of the donor and the recipient.The donor is not a drug addict or known person with criminal recordThe next of kin of the proposed unrelated donor is interviewed regarding awareness about his or her intention to donate an organ, the authenticity of the link between the donor and the recipient and the reasons for donation.Points to remember –The approved proposed donor would be subjected to all medical tests as required at relevant stages to determine his biological capacity and compatibility to donate the organ in question.Psychiatrist’s clearance in such cases is deemed mandatory to certify the donor’s mental condition, awareness, absence of any overt or latent psychiatric disease, and ability to give free consent.All prescribed forms have been completed by all relevant persons involved in the process of the transplantation.All interviews should be video recorded.The various forms outlined in the rules are as follows:Form 1: Near-relative consentForm 2: Spouse consentForm 3: Other than near-relative donor consentForm 4: Psychiatrist evaluation of the donorForm 5: HLA DNA profiling reportForm 7: Self consent for deceased donationForm 8: Consent for organ donation from family (also applicable for minors)Form 9: Consent for organ donation from unclaimed bodiesForm 10: Brain death declaration formForm 11: Joint transplant application by donor / recipientForm 12: Registration of hospital for organ transplantationForm 13: Registration of hospital for organ retrievalForm 16: Grant of registrationForm 17: Renewal of registrationForm 18: Decision by hospital authorization committeeForm 19: Decision by district authorization committeeForm 20: Verification of Domicile for non-near-relativeForm 21: Letter from EmbassyPenalties for removal of organ without authority, making or receiving payment for supplying human organs or contravening any other provisions of the Act have been made very stringent in order to serve as a deterrent for such activities.Request Quote from 20+ Hospitals & Doctors for Kidney Transplant in India.

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