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What guarantees to privacy do customers have when using 23andMe?

23andMe (company) does a decent job summarizing the privacy protections here, IMHO: 23andMe — Privacy and Data ProtectionHere are the highlights in simple terms:Data is stored with 23andMe, but customers retain a great deal of control in how their data is used and shared, up to and including downloading their raw data from the service and asking 23andMe to delete it.I implemented that feature many years ago, so I know it works.Company will NOT sell, lease or rent individual-level data to any third party for any purpose (including research) without explicit consent.23andMe runs a number of joint research projects with third parties (Parkinson's Disease, IBD, Lupus, etc) where participants do authorize sharing when they enroll. Some may receive free or subsidized genotyping service as a part of the research project.Participation in internal 23andMe research is voluntary and consent can be revoked at any time without impacting the rest of the service.It's worth noting that the majority of 23andMe customers choose to participate.Company WILL use and / or share aggregate information with third parties in order to perform business development, initiate research, market their services, and improve services.Aggregate information has been stripped of identifying data and combined with information of others so that one cannot reasonably be identified as an individual.23andMe has to comply with all applicable US laws, so it's possible they may ultimately be required by law to comply with a valid court order, subpoena, or search warrant for genetic or personal information. It's worth noting that they are committed to actively resisting attempts to access the data and so far they have produced no data in response to 5 requests they have received.For more details, see 23andPrivacy: Your Data and Law Enforcement and 23andMe — Transparency ReportFull privacy statement: https://www.23andme.com/about/privacy/Terms of service: https://www.23andme.com/about/tos/Research consent: https://www.23andme.com/about/consent/

What are the most difficult and useful things people have to learn in their 20s?

Here are some things I really, really wish I knew when I was twenty.Love hurts, but not as much as not loving.The friendships you nurture will have a greater effect on your life than where you work or what you earn.You are not your job. You are not your bankroll. You are not the sum of your possessions.The company does not love you. It has no heart. You are replaceable. Keep your parachute handy.Few decisions will ever shape your future life more than who you choose to marry. To marry well, you must choose well.Love is a commitment.Your passions will grow out of your values. Make early, wise choices to value what (and who) is good, trustworthy, and praiseworthy.Integrity preserved is honor won.Rejoice in your health. It fades fast.Find a passion. Pick a hobby, own it: photography, juggling—whatever. Get your 10K hours of perfect practice in early and change your life.[1]Don’t bother comparing yourself to others—this only leads to heartbreak, anger, and disappointment.Most disappointments arise from unmet expectations. Set realistic expectations for yourself, based on your strengths, then strive to exceed them.Don’t drive others to meet expectations they’ve committed to — lead, inspire, and help them do it.Don’t set expectations for others when they have not or cannot commit to them.Expectations you never communicate and negotiate will rarely be met—except by accident.Don’t complain. Either change your situation, learn to cope, or change perspective.Don’t worry about getting a big salary in your youth: first learn to execute tasks with skill, excellence, and grace.Little stuff matters—even in lowly jobs. The boss notices—and even if not, your peers and colleagues will.Ultimately, privacy is a myth: God sees everything. The cloud records everything. NSA files everything. So, live transparently and don't waste useless energy hiding failures.[2]Don’t look down on others because they don’t have what you didn’t earn: your intellect, your beauty, and your culture of birth are undeserved gifts. Stay humble.Failure is an opportunity: no great man or woman ever achieved significance without great failures. Fail forward.[3]Never withhold an apology when it’s merited. Deliver it quickly, sincerely, and personally—before resentment festers.You don’t need to nurture old guilt when you’re forgiven. But remembering the shame can help you avoid repeats.Mere belief in anything signifies little more than assent: trust and behavior reveal where true convictions lie.The main thing you need to do quickly is to stop doing things quickly. Trade hurry for calm, confidence, and precision.Everybody needs an editor. Everybody. Especially editors.Get your work done first so you can play without guilt. Even better, make work play and the fun never ends!If you want to develop your passion and gift, stop worrying about the things you do poorly. Go with your strengths!Avoid fights. Seriously. Avoid them like a plague: nobody wins in a fight, even if you walk away unscathed. But when a fight picks you, leave everything on the mat and give it your all. Hold nothing back.If you're bored, you’re doing it wrong.The skills that will help your career most are the abilities to assimilate, communicate, and persuade. Keep learning.Nothing in this life—no pain, no agony, no failure—compares to the eternal joy of Heaven. Live in light of eternity.Protect your joy. Nothing is easier to lose by over-thinking, overanalyzing, and second-guessing. On the other hand, always consider the long-term consequences of your choices: stupid decisions made in the moment can rob you of years of joy and happiness.Your purpose in life determines how you frame events. You can maintain your joy in the most dire circumstances if you find meaning for your life. Dig deep. (Frankl, Viktor E. Man's Search for Meaning. Boston: Beacon Press, 2006.)It truly matters what you think about. Think well by reading good books, building good, loving relationships, having good conversation, and imitating great people.I'm still learning — in fact I haven’t fully appreciated most of the list I made, myself. And I’m still adding to it. But I’m getting better.Rich »∵«http://twitter.com/RichTatumFOOTNOTES:Gladwell, Malcolm. Outliers: The Story of Success. New York: Little, Brown and Co., 2008.“NSA warrantless surveillance (2001–07).” Wikipedia. Accessed September 24, 2016.Maddock, Mike. “If You Have To Fail — And You Do — Fail Forward.” Forbes. Forbes, Inc., 10 Oct. 2012. Web. 24 Sept. 2016.UPDATE (09/24/2016): This answer has been flagged as “Needs Attribution” and is, at this date, hidden. I have added an attribution for the notion of 10,000 hours of practice, a link to the Wipiedia article on the NSA, and a reference to Viktor Frankle regarding finding meaning in life, but apart from Googling every statement and finding some sort of third-party claim to back up each assertion, I am at a loss for what to do. (Frankly, I think the citations hurt the article as it makes it seem less like a piece of advice and more like an essay that somebody researched.)This is a list of “received wisdom.” I should make it clear that I am not inventing anything new here — this is stuff I learned precisely because it was taught to me.So, unless the articles status is repealed, I expect there will be very few people from this point on who will see this, but for all the people who’ve read this and thanked me, I want to be sure to say, “No, thank you!”UPDATE (09/25/2016): I was just notified by Quora that my answer and been reviewed and removed from moderation. Thanks!

What are some ways to prevent and/or deal with legal issues that arise from actions of users on user generated content websites?

What’s required overall is reliable risk management. Because of the fairly high risk of liability exposure that’s involved with user generated content (UGC) sites, you’ll want to engage a knowledgeable attorney to draft the Terms of Use and Privacy Policy.The terms of use is your contract with users, which they need to agree to prior to using the site. It should be specifically tailored to your website, which is why you need a good lawyer who can help you minimize your liability exposure.The privacy policy is a set of disclosures a site owner must disclose to users. As opposed to policies and terms of use which are contractual, privacy policy is legally required - in word and action. In other words, a service provider is legally responsible for protecting user information. The privacy statement needs to specify how you’re going to protect a user’s privacy and data (including information stored in data logs), and how you will respond in the event of a breach of security.We see companies and website owners often at LawTrades that mistakenly believe they can simply adopt another site’s terms or privacy statements. This is very risky since every company and site is different, and therefore will need language that fits and protects them.I also get many questions about potential defamation or other harmful communications or posts. The good news for US operators is that the Communications Decency Act (CDA) provides exemptions from liability for some content or behavior which could be considered offensive - as long as it’s not a tort or criminally prohibited.Specifically, Section 230 says that “no provider or user of an interactive computer service shall be treated as the publisher or speaker of any information provided by another information content provider.” Translation: there’s general immunity for UGC sites when some of the UGC content is defamatory or misleading, even when the site owner is aware that the the UGC content is noxious. Moreover, unless the operator has agreed (e.g., in the Terms of Use) to remove such content, the default position of the CDA is that a site owner is not required to take down harmful posts or content - again, as long as it’s not a crime or a tort.Intellectual property is another legal item to be aware of. Users on UGC sites can sometimes post work (chiefly videos) to which they have no rights. Here again, the US offers operators some fairly stout safe harbor provisions. The Online Copyright Infringement Liability Limitation Act (OCILLA) effectively offers operators immunity from liability for users’ copyright infringements. In contrast to the CDA, however, OCILLA requires site owners to immediately remove the protected IP. In addition, the operator is required to not have actual knowledge of the IP infringement.Suggested PracticesIn addition to having a privacy policy and carefully drafted Terms of Use that your users agree to, there are certain actions you can take that can help you minimize liability as a service provider:Regularly review and update the Terms of Use.Eligibility for some OCILLA safe harbor provisions - specifically under the Digital Millennium Copyright Act (DMCA) - require a service provider to register with the copyright office. More information is available http://www.copyright.gov/onlinesp/ here.Be responsive to complaints.Consider insurance. New insurance products are available for service providers of UGC sites that can significantly reduce liability costs.Adequate training. Ensure that your employees are trained about legal issues, policies and risk management strategies.Please feel free to message me directly if I can help answer any further questions you have about the legal issues surrounding user generated content websites. Also take a look at LawTrades for help with Terms of Use and other risk management strategies for UGC service providers. Hope this is helpful!

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